Just diagnosed with Congenital Horner syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Congenital Horner syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Congenital Horner syndrome hub →Overview
Congenital Horner syndrome is a rare condition. Also known as Congenital Claude-Bernard-Horner syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Congenital Horner syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:91413 · OMIM 143000 · ICD-10 G90.2 · GARD 0006670
Find care for Congenital Horner syndrome
Authoritative references for Congenital Horner syndrome
Research & market landscape for Congenital Horner syndrome
Following Congenital Horner syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Congenital Horner syndrome — the real-world landscape behind the condition, in one place.
- Latest Congenital Horner syndrome research on PubMed ↗
- Recruiting Congenital Horner syndrome trials on ClinicalTrials.gov ↗
- Explore the Congenital Horner syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Congenital Horner syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is Congenital Horner syndrome?
Congenital Horner syndrome is a rare condition. Also known as Congenital Claude-Bernard-Horner syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Congenital Horner syndrome together in one place.
What are the symptoms of Congenital Horner syndrome?
Symptoms of Congenital Horner syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Congenital Horner syndrome.
How is Congenital Horner syndrome treated?
Treatment for Congenital Horner syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Congenital Horner syndrome, and review current options with them.
What causes Congenital Horner syndrome — is it genetic?
The cause and inheritance of Congenital Horner syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Congenital Horner syndrome can explain what it means for you and your family.
I was just diagnosed with Congenital Horner syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Congenital Horner syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Congenital Horner syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Congenital Horner syndrome, filtered to your area.
Are there clinical trials for Congenital Horner syndrome?
Tomeko shows live, recruiting studies for Congenital Horner syndrome from ClinicalTrials.gov on the hub.
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