Just diagnosed with Coats disease?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Coats disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Coats disease hub →Overview
Coats disease is a rare condition. Also known as Congenital retinal telangiectasia, Leber miliary aneurysm. Tomeko brings together the specialists, research, clinical trials, treatments and community for Coats disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:190 · OMIM 300216 · ICD-10 H35.0 · GARD 0006121
Find care for Coats disease
Patient organizations for Coats disease
- American Foundation for the Blind
Authoritative references for Coats disease
Research & market landscape for Coats disease
Following Coats disease for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Coats disease — the real-world landscape behind the condition, in one place.
- Latest Coats disease research on PubMed ↗
- Recruiting Coats disease trials on ClinicalTrials.gov ↗
- Explore the Coats disease research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Coats disease and every rare condition. See how Tomeko works with industry →
Common questions
What is Coats disease?
Coats disease is a rare condition. Also known as Congenital retinal telangiectasia, Leber miliary aneurysm. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Coats disease together in one place.
What are the symptoms of Coats disease?
Symptoms of Coats disease vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Coats disease.
How is Coats disease treated?
Treatment for Coats disease depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Coats disease, and review current options with them.
What causes Coats disease — is it genetic?
The cause and inheritance of Coats disease are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Coats disease can explain what it means for you and your family.
I was just diagnosed with Coats disease — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Coats disease, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Coats disease?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Coats disease, filtered to your area.
Are there clinical trials for Coats disease?
Tomeko shows live, recruiting studies for Coats disease from ClinicalTrials.gov on the hub.
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