Just diagnosed with CLOVES syndrome?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees CLOVES syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive CLOVES syndrome hub →Overview
CLOVES syndrome is a rare condition. Also known as Congenital lipomatous overgrowth-vascular malformation-epidermal nevi-skeletal anomaly syndrome, Congenital lipomatous overgrowth-vascular malformation-epidermal nevi-spinal anomaly syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for CLOVES syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:140944 · OMIM 612918 · ICD-10 Q87.3 · GARD 0010939
Find care for CLOVES syndrome
Authoritative references for CLOVES syndrome
Research & market landscape for CLOVES syndrome
Following CLOVES syndrome for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for CLOVES syndrome — the real-world landscape behind the condition, in one place.
- Latest CLOVES syndrome research on PubMed ↗
- Recruiting CLOVES syndrome trials on ClinicalTrials.gov ↗
- Explore the CLOVES syndrome research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for CLOVES syndrome and every rare condition. See how Tomeko works with industry →
Common questions
What is CLOVES syndrome?
CLOVES syndrome is a rare condition. Also known as Congenital lipomatous overgrowth-vascular malformation-epidermal nevi-skeletal anomaly syndrome, Congenital lipomatous overgrowth-vascular malformation-epidermal nevi-spinal anomaly syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for CLOVES syndrome together in one place.
What are the symptoms of CLOVES syndrome?
Symptoms of CLOVES syndrome vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats CLOVES syndrome.
How is CLOVES syndrome treated?
Treatment for CLOVES syndrome depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see CLOVES syndrome, and review current options with them.
What causes CLOVES syndrome — is it genetic?
The cause and inheritance of CLOVES syndrome are described in the authoritative references linked on this page. A genetics or specialist clinician who treats CLOVES syndrome can explain what it means for you and your family.
I was just diagnosed with CLOVES syndrome — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees CLOVES syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for CLOVES syndrome?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat CLOVES syndrome, filtered to your area.
Are there clinical trials for CLOVES syndrome?
Tomeko shows live, recruiting studies for CLOVES syndrome from ClinicalTrials.gov on the hub.
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