Just diagnosed with Cloacal exstrophy?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Cloacal exstrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Cloacal exstrophy hub →Overview
Cloacal exstrophy is a rare condition. Also known as OEIS complex, Omphalocele-cloacal exstrophy-imperforate anus-spinal defect syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Cloacal exstrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93929 · OMIM 258040 · ICD-10 Q64.1 · GARD 0004080
Find care for Cloacal exstrophy
Authoritative references for Cloacal exstrophy
Research & market landscape for Cloacal exstrophy
Following Cloacal exstrophy for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Cloacal exstrophy — the real-world landscape behind the condition, in one place.
- Latest Cloacal exstrophy research on PubMed ↗
- Recruiting Cloacal exstrophy trials on ClinicalTrials.gov ↗
- Explore the Cloacal exstrophy research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Cloacal exstrophy and every rare condition. See how Tomeko works with industry →
Common questions
What is Cloacal exstrophy?
Cloacal exstrophy is a rare condition. Also known as OEIS complex, Omphalocele-cloacal exstrophy-imperforate anus-spinal defect syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Cloacal exstrophy together in one place.
What are the symptoms of Cloacal exstrophy?
Symptoms of Cloacal exstrophy vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Cloacal exstrophy.
How is Cloacal exstrophy treated?
Treatment for Cloacal exstrophy depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Cloacal exstrophy, and review current options with them.
What causes Cloacal exstrophy — is it genetic?
The cause and inheritance of Cloacal exstrophy are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Cloacal exstrophy can explain what it means for you and your family.
I was just diagnosed with Cloacal exstrophy — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Cloacal exstrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Cloacal exstrophy?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Cloacal exstrophy, filtered to your area.
Are there clinical trials for Cloacal exstrophy?
Tomeko shows live, recruiting studies for Cloacal exstrophy from ClinicalTrials.gov on the hub.
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