Just diagnosed with Caudal duplication?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Caudal duplication, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Caudal duplication hub →Overview
Caudal duplication is a rare condition. Also known as Dipygus, Split notochord syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Caudal duplication so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1756 · OMIM 607864 · ICD-10 Q87.8 · GARD 0001164
Find care for Caudal duplication
Authoritative references for Caudal duplication
Research & market landscape for Caudal duplication
Following Caudal duplication for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Caudal duplication — the real-world landscape behind the condition, in one place.
- Latest Caudal duplication research on PubMed ↗
- Recruiting Caudal duplication trials on ClinicalTrials.gov ↗
- Explore the Caudal duplication research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Caudal duplication and every rare condition. See how Tomeko works with industry →
Common questions
What is Caudal duplication?
Caudal duplication is a rare condition. Also known as Dipygus, Split notochord syndrome. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Caudal duplication together in one place.
What are the symptoms of Caudal duplication?
Symptoms of Caudal duplication vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Caudal duplication.
How is Caudal duplication treated?
Treatment for Caudal duplication depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Caudal duplication, and review current options with them.
What causes Caudal duplication — is it genetic?
The cause and inheritance of Caudal duplication are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Caudal duplication can explain what it means for you and your family.
I was just diagnosed with Caudal duplication — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Caudal duplication, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Caudal duplication?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Caudal duplication, filtered to your area.
Are there clinical trials for Caudal duplication?
Tomeko shows live, recruiting studies for Caudal duplication from ClinicalTrials.gov on the hub.
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