Just diagnosed with Castleman disease?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Castleman disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Castleman disease hub →Overview
Castleman disease is a rare condition. Also known as Angiofollicular ganglionic hyperplasia, Angiofollicular lymph hyperplasia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Castleman disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:160 · OMIM 148000 · ICD-10 D47.7 · GARD 0012656
Find care for Castleman disease
Authoritative references for Castleman disease
Research & market landscape for Castleman disease
Following Castleman disease for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Castleman disease — the real-world landscape behind the condition, in one place.
- Latest Castleman disease research on PubMed ↗
- Recruiting Castleman disease trials on ClinicalTrials.gov ↗
- Explore the Castleman disease research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Castleman disease and every rare condition. See how Tomeko works with industry →
Common questions
What is Castleman disease?
Castleman disease is a rare condition. Also known as Angiofollicular ganglionic hyperplasia, Angiofollicular lymph hyperplasia. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Castleman disease together in one place.
What are the symptoms of Castleman disease?
Symptoms of Castleman disease vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Castleman disease.
How is Castleman disease treated?
Treatment for Castleman disease depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Castleman disease, and review current options with them.
What causes Castleman disease — is it genetic?
The cause and inheritance of Castleman disease are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Castleman disease can explain what it means for you and your family.
I was just diagnosed with Castleman disease — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Castleman disease, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Castleman disease?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Castleman disease, filtered to your area.
Are there clinical trials for Castleman disease?
Tomeko shows live, recruiting studies for Castleman disease from ClinicalTrials.gov on the hub.
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