Just diagnosed with Benign intracranial hypertension?
You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Benign intracranial hypertension, look for clinical trials, and connect with others living with it — all in one place.
Open the full interactive Benign intracranial hypertension hub →Overview
Benign intracranial hypertension is a rare condition. Also known as Benign intracranial hypertension, IIH, Pseudotumor cerebri. Tomeko brings together the specialists, research, clinical trials, treatments and community for Benign intracranial hypertension so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:238624 · OMIM 243200 · ICD-10 G93.2 · GARD 0004561
Find care for Benign intracranial hypertension
Authoritative references for Benign intracranial hypertension
Research & market landscape for Benign intracranial hypertension
Following Benign intracranial hypertension for research or industry? Tomeko brings together the recruiting trials, the latest literature, patient organizations, and the specialist and care-center footprint for Benign intracranial hypertension — the real-world landscape behind the condition, in one place.
- Latest Benign intracranial hypertension research on PubMed ↗
- Recruiting Benign intracranial hypertension trials on ClinicalTrials.gov ↗
- Explore the Benign intracranial hypertension research & specialist footprint on Tomeko
Researchers, patient organizations & industry: Tomeko provides de-identified, no-PHI demand and engagement signal, trial awareness, and a labeled, editorially-firewalled presence for Benign intracranial hypertension and every rare condition. See how Tomeko works with industry →
Common questions
What is Benign intracranial hypertension?
Benign intracranial hypertension is a rare condition. Also known as Benign intracranial hypertension, IIH, Pseudotumor cerebri. For an authoritative medical description see the reference sources on this page; Tomeko brings the specialists, clinical trials, patient organizations and community for Benign intracranial hypertension together in one place.
What are the symptoms of Benign intracranial hypertension?
Symptoms of Benign intracranial hypertension vary from person to person. For a reviewed, plain-language overview see the authoritative references below (NIH GARD, Orphanet), and discuss your own symptoms with a clinician who treats Benign intracranial hypertension.
How is Benign intracranial hypertension treated?
Treatment for Benign intracranial hypertension depends on the individual and is managed by specialists. Use Tomeko to find clinicians and Centers of Excellence who see Benign intracranial hypertension, and review current options with them.
What causes Benign intracranial hypertension — is it genetic?
The cause and inheritance of Benign intracranial hypertension are described in the authoritative references linked on this page. A genetics or specialist clinician who treats Benign intracranial hypertension can explain what it means for you and your family.
I was just diagnosed with Benign intracranial hypertension — what should I do first?
Start by learning the basics from an authoritative source, find a specialist or center that sees Benign intracranial hypertension, and connect with a patient organization. Tomeko brings these together on one hub.
Where can I find a specialist for Benign intracranial hypertension?
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Benign intracranial hypertension, filtered to your area.
Are there clinical trials for Benign intracranial hypertension?
Tomeko shows live, recruiting studies for Benign intracranial hypertension from ClinicalTrials.gov on the hub.
Related conditions
Other conditions on Tomeko you may be looking for:
- Acetazolamide-responsive myotonia
- Acquired porencephaly
- Actin accumulation myopathy
- Action myoclonus-renal failure syndrome
- Acute disseminated encephalomyelitis
- Acute disseminated encephalomyelitis with anti-MOG antibodies
- Acute disseminated encephalomyelitis without anti-MOG antibodies
- Acute encephalopathy with biphasic seizures and late reduced diffusion